Smiley Face

Hello all!  I just wanted to write a short blog to share my excitement for the day.  My little girl is starting to smile!  She has gave very few smiles here and there for about 3 weeks.  She does not hand them out often though.  She really likes smiling at some of her favorite nurses and she is really stingy with them with me.  BUT not *as* stingy today.  And yes, the smiles are finger induced, but I don't care!  I will take it! You will have to read the blog before you get to see the pics! :)

If you are being directed here from Sunni's new facebook page some of this update will be old news.  For those that do not know I created Sunni a separate fb from my own so that I could better manage my friends and family and keep everybody updated on Sunni that actually wants to hear.  I never imagined that so many people would "like it."  I saw a lot of nurses on there--which is a little intimidating--but I welcome them either way!  https://www.facebook.com/SunnisStory

So yesterday Sunni just was not acting like herself and I could tell that she did not feel very good.  She did not want me to hold her which sucked for me but I understood.  She was desatting as low as 62 for no apparent reason.   Usually when she desats it is because she is choking, coughing, gagging, or throwing up.  None of those were happening.  It just seemed like she was breathing harder and was very uncomfortable.  Her sats are usually in the 90's.

I told the nurse that it just was not like her to just desat without an obvious reason.  This nurse was one that we have had before but not regularly.  So she called the dr.  (I so want to add "and the dr said" right here-haha--Pre-K teacher at heart).  The doc upped her oxygen, stopped feeds, and ordered an xray and cbc.  Sunni immediately felt better with the added oxygen support.  The xray was unchanged from the last so everything looked ok in that area and the cbc was fine.  So either the feeds (5cc/hr) were doing it (somehow) or she just needed some breathing support.  Either way she got some relief and had a MUCH better day today!

This morning they started the feeds back up to 2cc/hr and left the oxygen up.  No other changes.  I mentioned in the last blog that her blood pressure has always been high so they ordered an ultrasound on her kidneys and a urine test.  The urine was fine.  One kidney is bigger than the other but looked fine so they are not going to put her on medication for high bp (right now).

So for those of you that did not skip straight to the pictures without reading---here you are!  I am going to attempt to post a video too.  Hopefully it works :)

Bad quality because I could not let her know I was taking pictures.  haha

This melts my heart.  I love her so much!

You are my sunshine...

Little smile without touching her chin! :)

Smiling is Exhausting :)