Shawn and I got there around 10:30 and were finally called back to a sono room around 11:20. I thought I might throw during that wait--I was more nervous than I thought I would be. The lady that did the sono was very friendly and talked the entire time letting us know what she was looking at. When it finally came to the heart, lungs, diaphragm, etc.....she did not say much.
My doctor in Amarillo made it sound like Texas Tech was going to do a really long sonogram with better technology or better equipment--but it did not seem that way to me at all. It was like a normal sonogram in the normal amount of time. It might have lasted 15 minutes. I was glad to see Miss Sunni and prayed the entire time they were finding good things.
The lady got finished and said she was going to take the pictures to the Dr. He would review them and then meet with us. After she dropped them off by him to review she took us to a "family counseling room." I am posting a picture just so you will know these rooms are not fun to be in --AT ALL-- and the first sign was the big box of Kleenex on the table.
After a short wait Dr. Edward Yeomans comes in and introduces himself. He said that the baby has a pretty bad left-side diaphragmatic hernia and her heart is already pushed completely to the right side of her chest. He explained what all this means exactly and how the intestines are already in the upper chest cavity which will really hinder the growth of the left lung and basically "take over."
He said that the sonographer saw that her heart has super thin walls----which was called something I forgot because my head was spinning----but he was going to make that as "questionable" in his paperwork at this time because he didn't see it on the pictures.
He then started with what I knew this would lead up to. The persuasion to get an amniocentesis. He said that there is a 20% chance that Sunni is not "genetically normal" and that an amnio would let us know. I told him no and he said that was my choice but he recommended it and would do it right then. Even after I said no and he said he would have to respect that decision he kept pushing it. He explained that if I did have the amnio and the baby was declared "not genetically normal" they would not offer a c-section at delivery and basically would not fight to keep the baby alive. I was of course fighting back tears and knew in my heart I would not be getting an amnio right then. I really just with we could have left at that point. CDH Moms--Is this the news/statistics you got? That there was a 20% chance? I was too upset to ask if this was just a stat for MY baby of ALL babies with CDH.
So after Shawn had to finally tell him NO we are not going to get the amnio today I felt like the tone had changed and I wasn't going to get any questions answered. He seemed bothered that I said no---even though he claimed to "respect my decision."
ALSO--CDH Moms--please correct me if I am wrong but Dr. Yeomans said that the hernia surgery is almost always done within 24-48 hours. That sent red flags up because I have read TONS of blogs of other babies that this was not the case at all. I was thinking; either he doesn't know what he is talking about or Lubbock rushes things.
As we were leaving he pushed the idea once more--that at the next appointment we can still do an amnio after I have thought about it.
As soon as we hit the elevator I was in tears. I do not have good feelings about Sunni being in Lubbock but I do not know how to go about changing that. Houston would be the optimal place since Texas Children's Hospital is there and is ranked like #2 in the nation. I also have family there. BUT then again I would be very far away from Shawn & the boys.
So all in all I feel like I got worse news than I had before (with the heart and the news that the hernia was pretty bad already---according to him). I really thought he might set in on some of the sono instead of just looking at still frame pictures. I did not care for the dr. I don't know if its because he didnt have news that I didnt want to hear or if I have a legitimate reason.
CDH Mom's--please tell me if this was what you experienced your first appointment. Also--should there have been any other news he should have given me?
After I finally got my bawl session over with Friday evening we enjoyed our time in Lubbock. I will post some pics of the boys having fun.